Sunday, September 6, 2009

A nice Lab or Day weekend

So far we have had a very nice 3-day weekend despite spring-like weather, with rain/hail/thunder etc rolling through each hour. We met with Dr. Safari, Kay's surgical GYN oncologist Friday afternoon. He is our back to earth guy, Kay almost always has tears at his visits, and though he is a really nice man, and seems very knowledgeable, he is not one to have us leave with undue optimism. He agrees that it appears the Kay has no sign of cancer at this time, but is very much the realist that this is not a stamp of long term success, rather a step in the process. He strongly agrees with Dr. McCroskey that we should go ahead with a fairly long course of Avastin, the tumor blood vessel antagonist, for 15 more courses, i.e. nearly a year of every 3 month infusions. Though this is considerably easier and less risky that the chemotherapy Kay has already completed, there are potential major complications of this therapy, and it makes us feel that if everyone wants Kay to get this course of treatment, that no one is very confident that the cancer is completely vanquished. It is a reality check, but we are really trying to flatten the highs and lows of this roller coaster of emotions. It is a challenge we are rising to: be in this for the marathon it is likely to be, while enjoying every step of the way to the fullest extent that we can.

This week we will mostly be trying to wrap up as many work and home loose ends as possible, in preparation for our big 25th anniversary trip. In addition we have a big day Friday. In the morning we go to Seattle Cancer Alliance for genetic counselling about this CA-125 gene and how to manage this for ourselves and our family, then back to Puyallup in the afternoon to get the biliary stent removed endoscopically. IN this procedure Dr. Moussan, a gastroenterolgist, will use a fiber optic endoscope to go through Kay's mouth, esophagus and stomach into the small bowel and pull out the plastic tube (aka stent) that was used to keep the bile flowing when the tumor was obstructing its flow. This should be a minor procedure, but all procedures have their issues, and we want all your prayers that this goes well too.

May you all enjoy this weekend, and enter the fall/ school season with joy and enthusiasm.

Ed

1 comment:

albesullivan said...

Just remember, that when doctors tell you the 'statistical outcomes' of a cancer, they are giving you numbers based on millions of people; they are not giving you numbers based on YOU. Yes, you and your cancer live within the greater picture of those statistics, but your case, your hope, your faith, your outcome, are based on you, and you alone. And you must live each day based on you alone, not on those statistics, no matter what they say.